Human beings behave in the same way
cars behave. When the fuel tank of a car is empty it will not move. In human
being hope serves the same purpose as fuel in car. A person without hope cannot
live because hope is 99% of our life.
Most warriors get to a point in
life when the hope levels have gone down. You need to refuel your hope and
continue with this journey. There different hope fuelling stations which can
fill the hope gap. One of them is books but not every book can bring hope
again. Imagine a car that uses petrol to be fuelled with diesel, it will not
move.
The better hope fuelling station
for sickle cell warriors is reading books which have been written by fellow
warriors or even parents to warriors. This can help you overcome the challenges
that have put your hope level down. I have compiled a listed of 10 books every
sickle cell warrior must read
S
is for Survivor by Saamira Haruna Sanusi
This book is an autobiographical
note about the experiences this Nigerian lady went through with Sickle Cell
Anaemia and many people are in similar situations without knowing that there is
hope. Growing up, life was always about medications after medications, and this
life of painful crisis makes one to believe that there is no meaning or purpose
to life. It also creates the tendency to feel hopeless and helpless. S through
Sickle Cell patient experiences from birth to the time when she had her Bone
Marrow Transplant and these experiences in the form of crisis and health
complications are familiar with many Sickle Cell patients. These peculiar
experiences unknown to the rest of the world tell a success story that shows
transformation from SS through genetic engineering to AA (genotype), and
therefore permanently SS free. In this book Saamira shares her personal story
of experience with the disease and a concrete message; “Sickle Cell Anaemia has
a cure and I am a message of Hope”.
Still
standing by Toyin Adesola
Still Standing is the compelling
and courageous story of a woman’s battle with Sickle Cell Anaemia. This book
chronicles the experiences of Toyin Adesola as she battles the traumatic
challenges of living with the disorder. It is a story of hope, courage and
tenacity that is recommended for anyone who feels life has dealt them a bad
hand. It is a story that touches the soul and inspires one to look beyond one’s
circumstances
I
Only Cry At Night: living with Sickle Cell Disease by P.Allen Jones
Kristina’s review “This book is a
great read! It takes you on a journey through the life of a strong willed,
ambitious, and humble woman who fought many battles in life ON TOP of dealing
with Sickle Cell disease. Throughout this heartfelt story, Jones draws you in
with her humanistic writing style, giving readers an opportunity to step inside
the shoes of a sickle cell patient and see what life is like while living with
this rare disease. This book is an inspiring read and will motivate anyone who
has ever had to overcome a struggle of any kind, and felt alone while doing so.
It's also very informative for anyone who has sickle cell disease or knows
someone who does. I highly recommend it."
Living
With Sickle Cell Disease: The Struggle to Survive by Judy Gray Johnson
Review on Amazon “This book is a
fluent, informative and candid story of a life filled with a fight for
surviving a little-known genetic disease and a fight against prejudice spanning
in decades. The author could not win the all battles but she always tried and
never gave up. I recommend this book to those who want to learn how someone
with a disability can survive and manage a productive and bold life. It is also
a must read book for sickle cell patients who want to deal with both the
disease and poor bedside manners.”
Sickle
Cell Natural Healing: A Mother's Journey by Tamika Moseley
After spending every three months
of her new-born’s life in the hospital managing his sickle cell disease, Tamika
Moseley knew she had to change what she was doing or the hospital would be her
second home. In this deeply personal book, Tamika shares her story of the
difficult journey she took to find natural ways to treat her son's debilitating
disease. Three years since she started using herbs to minimize his sickle cell
crises, her son is living a normal, healthy and pain-free life. Whether you
have sickle cell disease or the trait, this book will show you what your body
needs and how to treat your symptoms so that pain is no longer a part of your
vocabulary. As Tamika likes to say, "Knowledge is power" Sickle Cell
Natural Healing: A Mother's Journey gives you the benefit of the wisdom one
fearless and determined mother collected so that others suffering with this
disease can thrive.
Sickle
Cell Disease 100 Years Later by Dan Moore Sr and Phyllis Zachery-Thomas
A moving account of patients and
families dealing with the effects of sickle cell disease, a genetic disorder.
Sickle
Cell Anaemia Challenges: Courage to Face Adversity by Willa Boykin
Sickle Cell Anaemia Challenges:
Courage to Face Adversity Describes an on the road account of what life was
really like as a mother, caregiver and mentor for two of their children born
with sickle cell anaemia. It also shares valuable lessons on living a balance
lifestyle that includes wisdom. We cannot be balanced at all times, but the
book will give you an outlook on character for those who walk in wisdom and
those who are not. Love is not love until first it has been given away, and
then it can be multiplied back to you. This is accomplished only through
obedience.
Meet
Camden: Living with Sickle Cell Anaemia by Ishia L. Washington-Gattis
This fun and knowledgeable book is
about a 9 year old boy named Camden. He has Sickle Cell Anaemia. This book will
show Camden's courage and strength in his day to day life. It will also explain
some of the things you may go through if you have Sickle Cell Anaemia.
My
Sickle Cell Story by Mariah Lynn Jeanae Roberts
"My Sickle Cell Story
"tells the journey of 7-year old Mariah Roberts, as she battles Sickle
Cell Disease. While every day is not easy, she remains strong through her faith
in God, love from her family, and the hope that one day she will be healed.
Mariah explains her sickness, triumphs over surgery, successfully completes her
first year of school. It is Mariah's hope that through "My Sickle Cell
Story" others like her will be encouraged as they remain strong with their
own battle. It takes one to reach one.
Taking
My Medicine: Seeing Sickle Cell Anaemia through My Eight Year Old Eyes: One
Child's Perspective by Egypt A. Harvey
This book explores the reality of
an eight year old child diagnosed with Sickle Cell Anaemia. Taking medication every
day is reality and has an impact on everyday life. This book captures the
author's personal thoughts and feelings about taking her medicine daily. She
feels it is important to share her story with other children diagnosed with
Sickle Cell Anaemia.
If you know any book that has
helped you to refuel your hope please share it in the comments section. If you
have written a book about your life as a sickle cell warrior please share it
with us.
Love Life!
Ssebandeke Ashiraf
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