Sickle Cell Warrior #6

10003 Sickle Cell Warrior #6



Donald O..24 Warrior years

It is difficult to put in words that which deserves more than words.
In such a situation when one is rendered speechless, silence is best observed.

Well., most of you who have the pleasure to know Donald may be familiar with his "larger than life" persona and his very eccentric ways of doing things.

I had the pleasure to interact with Donald a couple of years back at a Sickle Cell community meeting in Agakhan. Back then (2012) my Sickle Cell circle of friends wasn't as diverse as it is now and the few people who spoke out about Sickle Cell disease were considered to be brave and mighty titans. Donald was one of these titans.

True to the title, Donald has surpassed various perceived "limitations",mind and body. As sickle cell warriors, we are conditioned to restrict ourselves within the lines of the coloring box. We take what we are told we cant do as gospel truth and many of us live miserable unfulfilled lives. Donald seeks to break those barriers and create new ones, on his own terms. He has been working out and building body mass for almost 2 years now and still going strong. He started slow and grew and he continued to learn and understand his body. He takes care not to over exert himself and stress his body. Aside from his physical body; i believe that in order to see change in the physical, one has to first shift his mindset from the old conditioning of the mind to a mindset that makes everything possible. A warrior needs to have the knowledge on what works for him/her  and the wisdom to apply that knowledge in their daily lives.

Donalds words
"Inability and Disability is all in the mind. What you conceive in your mind comes to be. Pray daily because its the source of power and have faith because everything happens for a reason."

On a lighter note, Donald is a hit with the ladies though fortunately or unfortunately he only holds dear one lucky lady in his heart. Catch up with Donald on his Facebook and continue the conversation on Sickle Cell.

Love Life!
Lea

Sickle Cell Warrior #5

10003 Sickle Cell Warrior #5

Hi

My name is Caroline Omino. I'm a 28yr old Facilitator/Rapporteur at KEWOPA 


“I am the only warrior in a family of five. My siblings and my parents have always been supportive and understanding. It is very important to have a support system that understands what Sickle Cell is all about.  That way in a crisis and any other time they can help you. As a warrior it is important to understand your own body and type of strain you have. Management is key to being healthy. I eat healthy, exercise and drink lots of fluids but most importantly, I carry on and live like a normal person.” Through my passion in community service, I hope to continue creating awareness around Sickle Cell Disease by encouraging others to speak out and share their experiences and lessons with regards to living with the disease.

Join me on FACEBOOK as we continue the conversation around Sickle Cell Disease, and share stories that will initiate change for those who come after us.

Love Life!
Caro 

Sickle Cell Warrior #4






10003 Sickle Cell Warrior #4
Hi
My name is Frida Odee and i'm 25 years old. I am an independent social researcher also studying media, culture and society. Most importantly, I am a Sickle Cell Warrior and I hope to eventually become an accomplished social scientist. I did not know that I had a form of Sickle Cell until four years ago. I was relieved to find out what had been bothering me after years of being sickly. I am a warrior because I hope to inspire and spread awareness on Sickle Cell Disease and let other people know they are not alone.”
Talk to me on  TWITTER and lets continue the conversation as we create awareness of Sickle Cell Disease on 10003 Warrior Project .

Love Life!
Freda

Sickle Cell Warrior #3

10003 Sickle Cell Warrior #3

Hey there, my name is Catherine Odenyo and I am 29 years old. For all those years, I have lived with pain that can’t be explained in words, but each and every moment I have gotten to learn my body more. I didn't know I was a Warrior until I was 18, it was a difficult moment. Now that I know, I have to keep moving forward with hope and joy. And YES! I am a Warrior because I’m still here fighting and haven’t given up.

Love Life!
Catherine

Sickle Cell Warrior #2


10003 Sickle Cell Warrior #2

Hey there, my name is Fredrick Oywer and I am a 22 year old business Information Technology student. I have lived with the disease my whole life and despite the challenges it comes with, I have not let it be a hindrance to my life or even the way I live it. Growing up, I always participated in the same activities that my school mates engaged in and I truly enjoyed my childhood. Now, as a young adult, I still live my life to the fullest and certainly am thankful to God for all my friends and family who have been with me throughout.

Catch up with me on Facebook and let's keep the sickle cell awareness conversation going.

Love Life!
Freddy.

International Day of the Girl Child


Attempting to take selfies with Lady Laimani (top), Hon. Wamalwa (left) and Hon. Odinga (right).

This day was commemorated at the Hilton Hotel, Nairobi. The guest speakers included Hon. Ida Odinga, Lady Laimani Bidali and Caroline Mutoko among others. The Standard Group, Eve Sisters, Mothers & Daughters, Alabastron, Coca Cola and The Kenya Dairy Association are among the partners who made this day a success.

The purpose of the event was to celebrate the girl child in Kenya. This was seen through the invitation of different girls’ schools: primary and secondary. Different women university leaders were in attendance. Filled with pomp, colour and the splash of pink and purple, it was certain that this indeed was a girl’s event. The seating arrangement was strategically organized in dinner tables where 6 young girls from primary or secondary sat together with 4 ladies. I think the main aim for this was to encourage conversation between the different age sets.

The MC, Njeri Karuoya open the event by inviting performances from the different schools that were 
represented. The schools showcased pieces of song, poetry and choral verses that speak of the plight of the girl child in Africa. From poetry about FGM, abortion and sexual abuse to songs appreciating the beauty and the brains of the girl child.

As the speakers took the floor, their main emphasis was motivation creation and the importance of speaking out about issues affecting the girls; for example, the loss of value in the Kenyan girl child and the need for older, more successful role models to come up and guide the girl child. A lot was emphasized on the lack of priorities with regards to the superficial achievements seen in skin color and the size of the behind. This has become a rampant trend in our society,where the pressure to stand on a pedestal of perceived beauty for the acquisition of depreciating assets rather than acquisition of appreciating assets.

Another thing that was mentioned by the very candid Caroline Mutoko, was the message that the media was pumping out to the masses. What is considered attractive is what the media says it is. This creates a sort of cognitive dissonance that sets a high bar for the society especially the females who have to keep up with the likes of Kim Kardashian. The conversation hence shifted to the older woman: mothers, aunts, grandparents, guardians and teachers, the ones who have an obligation to teach and guide. They have supposedly failed in educating the young girl on the challenges of youth, and gifts of motherhood. Many young girls look up to disgruntled mothers and learn from them how lackluster life is which leads to an increased number of children with absentee mothers. The older women were urged to listen to their younger girls. After all, how are the girls to grow into their best selves without support and guidance?

There are instances where we are told we can be anything we want in the world but we fail to get an audience from our "well-off "mothers in the society to help mould our ideas or even mentor us. Young girls seek audience sometimes and they fail to get their mothers attention for one reason or another: goes to show the disparity in communication and information. Older more successful women  in the society refuse to take up responsibility in developing the younger generation, but are quick to point out their evils when they get this information from the media.

I enjoyed the event immensely and managed to get an audience with the guest speakers and VIP to talk about the 10003 Warrior Project. I got advice on who I could approach with regards to propelling the project. I must admit it was quite intimidating sitting and having lunch with the likes of Hon. Yvonne Wamalwa, Hon. Ida Odinga, Lady Laimani Bidali, Doreen Mbaya and Njeri Karuoya.

On my end, the event was a success. Not only because I got to speak to the big “wigs” (pun intended), but because I got to surround myself with young girls from different high schools and learn more about the challenges they are facing. Being able to connect and recall my high school and primary days was invaluable experience. How far I have come from being that shy soft spoken girl, to a very confident out spoken young woman, is such an amazing journey. Of course all has not happened overnight. Instead, I have cultivated simple daily steps and experiences that have helped to expand and grow me to the blooming flower I am.

More selfies, now with the young girls.

However I feel it will only be remembered by the large turn out and beautiful choral verses. I feel the 
young girls, those in my age group especially, still cannot bring themselves to ask for assistance from the older well established woman. A serious case of the fear of being inadequate and the worry of possible rejection. Moreover I also feel the more established woman maybe a little unapproachable to the young woman. Not because they are, but because that’s how they carry themselves, in my opinion. This gap between the two women maybe our undoing. I’m afraid if each of us don’t play our roles and meet each other halfway, we will always have events of commemoration without actionable objectives that will see the Kenyan woman bogged down instead of being uplifted.

Love Life!
Lea.

Progress Report



This past week has been so busy for the team and I. On Friday the 3rd of October we got officially accepted to the PAWA254 open membership and on Monday the 6th we were officially welcomed. It was a great opportunity for us as we got free working space sponsored by PAWA254. In addition, we will be guided through our project and the myriad of people and talent that exists there is so impressive. It certainly does make for an amazing working space.

Fast forward to Friday the 10th, we went for a Crowd Funding BootCamp at iHub* from 9am to 6pm. We were introduced to the 1% Club and The Cheetah Fund. Here we learnt about the importance of crowd funding, how to pitch ideas successfully, social media platforms to use, creative crowd funding and how to plan and present a crowd funding campaign. At the end of the day, we took home a successful campaign online and started getting some funds from supporters of the project.

And lastly, on Saturday the 11th I attended the International day of the girl child at Nairobi’s Hilton hotel. Read more on it HERE.


Sickle Cell Warrior #1


10003 Sickle Cell Warrior #1

Hey there? My name is Cecilia June. I am 18 years old and my ethnic background is Dholuo. Why I mention where I am from is because as other Warriors continue to share their stories, you will find a similarity of ethic backgrounds. Sickle cell does not have any tribal link but instead, it affects people mainly from malaria endemic regions. I love to sing and it brings me a lot of joy and peace. 

Sickle cell is real, yes, and I found myself in that situation. I figured it is God's plan, you never know with some things *laughs*. I have accepted myself the way I am because no matter what, I am beautifully and wonderfully made by the Creator. I am not complaining though, and what keeps me going is God and the support of my family.

If you know you have sickle cell, do not think that that is the end of you! Not at all. Instead, be yourself, speak what you think is right, have fun and enjoy life because you are a Warrior. Some situations in life happen so as to give us a different view point of the world. Without our differences, we would all be the same. I figure that is boring. Though sometimes life may seem hard, just keep going and trust in God and thank Him because He is the life giver.

Despite my challenges of medical care, school and health insurance,I am currently studying and fully intend on sitting for my Kenya Certificate of Secondary Education (KCSE) at Korogocho Glory Secondary School. My dream is to become a doctor in order to help in championing the cause of Sickle Cell Disease. 

No matter where you are, whether 'rich' or 'poor' your dreams are valued and valid: go out and reach for them. I know mine are and as such, I am reaching out for them. 

My school address is Korogocho Glory Secondary School, P.O. B ox 4243-00200 Nairobi. A success card would be cool :)

Love Life!
Cecilia