Showing posts with label sicke cell natural healing. Show all posts
Showing posts with label sicke cell natural healing. Show all posts

SICKLE CELL WARRIOR #16

10003 Warrior Project Sickle Cell Warrior #16


“The possibility to love another scared me; terrified me actually. Being a free spirit, apart of me is most alive when roaming, than I became a mother and for the first time I felt my heart live outside my body and that's the moment his laughter became my medicine.”
― Nikki Rowe

A mother with her young Sickle Cell Warrior. We salute all the mothers who take care of us in the dark of the night when the pain is most unbearable. Those who stand by our bedside with care to push us through all manner of pain. Mothers who brave themselves through the tears and remember to be the sunshine in our lives.

Love Life!

Sickle Cell Symptom #3 - PAIN

This is a story of pain.
Have you ever been in so much pain that you call out to the gods to take your life?
Well, for 23 years I've been living with this kind of pain.

My earliest memory was of feeling this tightness in my chest. At 4 years old, diagnosed with Sickle Cell Anemia and admitted for Pneumonia, I didn’t know what this discomfort was. Feeling the weight of the world on my chest, pulling and tugging from either side, I could not fully understand why my body was punishing me this way. Breathing was strenuous and uncomfortable, but all I wanted was someone to tell me all will be well, and that I didn’t have to feel this way ever again.
But like the many other Sickle Cell crises to come, I was given a combination of pethidine and morphine, very heavy pain medication that put me immediately to sleep as if the pain never existed. This is the kind of experience Sickle Cell warriors go through. Living in post trauma and constant fear of not knowing when this pain will come and if you'll pull through to the other side of a pain free body.

PAIN - Sickle Cell Crises

Pain episodes (crises) can occur without warning when sickle cells block blood flow and decrease oxygen delivery. This damages the cells in the affected tissue, resulting in the tissue becoming swollen, which irritates nearby nerve endings. People describe this pain as sharp, intense, stabbing, or throbbing. Severe crises can be even more uncomfortable than post-surgical pain or childbirth.
Pain can strike almost anywhere in the body and in more than one spot at a time. But the pain often occurs in the
  • Lower back
  • Legs
  • Arms
  • Abdomen
  • Chest
  • pelvis
  • ribs
  • spine
Most pain episodes do not have an obvious reason for their occurrence.  But here are some possible causes and things that your child should avoid if possible:
  • Swimming in cold water
  • Being out in cold weather
  • Getting too hot
  • Getting dehydrated from not drinking enough fluids
  • Colds and infections
  • Overdoing it—not getting enough sleep and rest
  • Drinking alcohol or smoking
  • Menstruation (getting your period)
  • Stress
  • Being around second-hand smoke 

Treating Pain at Home

Remember:  pain is a sign that something is wrong. Firs identify the cause of pain or the trigger and control or eliminate it. Pain is best treated using a variety of non-drug treatments along with medication
For example, you may need to guide yourself by using relaxation techniques, even if you're already familiar with how to do it. Other examples of non-drug treatments include massage, hot or cold packs, relaxation and guided imagery, distraction, music, food remedies and also reading to yourself. 
In addition one should drink lots of water and take pain reducing herbal treatment and foods.


10003 Natural PainKillers

To all Sickle Cell Warriors, no one can claim to know more pain than you. However I am here to urge you that even though pain is what you leave with, it doesn’t have to dictate the way you live your life. Don’t let the discomfort dull the light in your life and destroy the great parts that make us who we are; our ability to be tender with ourselves and humanity and the clarity to always find hope
I have been able to turn pain into a pillar of strength. By understanding that I am made stronger by it, I use it as a motivator to better my health and life. Pain is a signal and an indicator that the body gives to show us there is something wrong, and we need to heed and listen to rectify that which is causing our bodies to scream in pain.

I have lived 3 years now without severe debilitating pain. I still experience pain here and there but manageable pain. In this journey of ascension to a healthy pain free body, I take care of my physical, emotional and physiological body through what I consume. This is due to consuming a healthy organic and natural plant based only diet, to deliberately allowing high positive wholesome information to be fed into my mind. The conscientious choice of only feeding my body life giving, high frequency and positive energy has kept me medication and hospital free for 3 years now.
Start today, start now.  Uplift yourself by the choices you make. Don’t let pain control the direction of your life, let it be an indicator for making better choices in how you live your life. Take a deep breath and let it go!

Comment below and share what your understanding of pain is and how you manage it.



10003 Pain Quote. Photo Credit: Mutua Matheka


One Who Fears To Open Up To The Doctor Cannot Get Healed

In my language we have a proverb atya okubirira omusawo tawona loosely translated as the one who fears to open up to the doctor cannot get healed. This proverb means if you hide anything from the doctor, you will not get full treatment and probably your healing will be half baked.
It’s more common to get to the doctor’s room and refuse to tell him symptoms which you think are minor. At times the minor symptoms may be the cause of major problem.
The first step in securing the correct treatment plan for your pain and discomfort is to tell your doctor about all your symptoms and any changes in those symptoms as the treatment progresses. Even if you feel that they are not related to your condition, your doctor needs to know about them. You should also be completely honest about your lifestyle. For example if there is any other drugs you use apart from the one prescribed, tell your doctor.
This information will be held in the stricter confidence and will only guide your doctor towards the most appropriate plan of care.

Tell your doctor
  • When the symptoms started
  • What they feel like
  • How they are affecting your  life and
  • What makes the symptoms better or worse


The more specific your explanation, the more helpful it is.
 

Love Life!
Ssebandeke Ashiraf

WHAT TO EXPECT IN SICKLE CELL NUTRITIONAL COUNSELLING & DIETETICS


That antiseptic-latex-glove-hospital ‘smell’ wafts around & it hits you that this is the fifth crisis that has sent you to the A&E in just a month. Your medications don’t seem to be working as efficiently as the pamphlets assured you & now your physician has recommended you see the dietitian. He’s handed you the dietitian’s name and telephone number and says that he would like you to make an appointment. While you nod your head in agreement, your mind screams, “There is no way I want to do this. The doctor is out of remedies & now he’s sending me to seek help from a chef in a lab coat! Aaahhhh!!!”

It’s true, in some peoples’ minds dieticians & nutritionists are terms to simply dignify highly trained personal chefs or cooks. Some think that dieticians will just tell them what they already know. This is possible, but what you have read or been told by well-meaning friends and family may be incorrect. Dietitians are trained to critique the latest research, combine it with what we already know and provide up-to-date advice. This is why advice will change as time goes on and we learn more about how the body works, and the role food plays in health and disease. So, I thought I would give you a better understanding of what to expect when you’re expecting to see a registered dietitian (RD) or nutritionist (RN).

The first time you see the Registered Dietitian plan to spend about an hour. 90% of the appointment involves talking and during the first half you are going to be doing most of it. The other 10% is spent weighing you and reviewing other body measurements and food records.
Already things are looking up: no unpleasant procedures, no vile tasting medications.
After the introductory pleasantries, you should hear some rendition of “what brings you to my office today?”  This is an important question. The information in the medical chart doesn’t necessarily tell what you want out of the visit.  And that is a vital piece of information.  Because in the end, if your needs aren’t addressed, you’re never going to follow the recommendations anyway.
The answer to this question should be the largest part of your pre-visit homework.  If you are capable of answering it, the likelihood your appointment will be pleasant and helpful increases many fold. Think about why you are going and what you want to know. Write a list of questions if you have to, this will help guide the conversation and help the dietitian understand your perspective. Think of your most occurring Sickle Cell symptoms; think of what foods, illnesses, physical activities and environmental conditions that tend to trigger any symptoms.

What to Expect from a Nutritionist
But back to our imaginary visit…
You will be asked questions about your general health status, medical history, food allergies, the medications and supplements you  take, who does the cooking and shopping, what type of work you do (that gives some indication of how active you are at work), what type and amount of exercise (if any) you participate in.
Then there will be questions related to Sickle Cell: your control through the years, if and how often you experience pain crises & other symptoms, if and when you have had any mineral deficiencies, specific medications, herbs & supplements you are/ have been taking, their effects on you, etc.
If weight is an issue, you’ll be asked about your weight history, weight gain/loss programs you have tried, trigger foods and weight goals.  You will probably be weighed at this point.
Finally, you will provide a picture of your daily eating habits—what, how much and when do you eat? If you bring detailed food records (at least for 3-4 days) this part will go quicker and you’ll be able to give a more complete sense of your current diet. This will help you and the dietitian to look for trends and see the effect of different foods on your symptoms. If you aren’t involved in food preparation, bring along the person who is. And even if you do everything, having an additional person can help you remember more of what was said.
After explaining the basic dietary recommendations for Sickle Cell, you will together come up with a way to implement the recommendations in your specific situation; the challenge being to collaboratively develop a meal plan you can live with and actually enjoy that will help bring your blood sickling into better control.  And along the way you’ll formulate goals to achieve before the next visit.
And all through this part of the exchange you’ll be asked to demonstrate your understanding of the material covered. When you leave you should have written materials to help support what you discussed as well as a way to get in touch for additional questions.
Not so bad after all, right?
So when you do get a chance to visit a registered dietician or nutritionist, receive it with arms wide open, it will be one of the best things you ever did. Your physician can refer you to one or you can easily look for the nearest RD/RN closest to you on websites like LinkedIn or the Kenya Nutritionists & Dieticians Institute.
Warriors, win the fight to healthy living by hunting for a dietician today.


Love life!
Sharlene Mule.

NATURAL HEALING (2)

Herbal treatment has been and is still being widely researched and discussed in the scientific world. As we saw in our previous blog that it is important to know how the herbs work and their interactions with drugs and other foods. Especially for Sickle Cell Anemia, where many opt for alternative herbal treatment to avoid the vicious cycle of side effects from pharmaceutical drugs Today we look at some of the herbs commonly used, their uses, risks and interactions.
 
*SELECTED HERBS,THEIR COMMON USES AND RISKS
COMMON NAME
SCIENTIFIC SOURCE NAME
CLAIMS AND USES
RISKS
Aloe(gel)
Aloe Vera
Promote wound healing i.e. leg ulcers
Generally considered safe.
Chamomile(flowers)
Matricaria chamomilla
Relieve indigestion.
Generally considered safe.
Garlic(bulbs)
Allium sativum
Lower blood lipids and blood pressure.
Generally considered safe; may cause garlic breath, body odor, gas and GI distress. Inhibits blood clotting.
Ginger
Zingiber officinale
Prevent motion sickness, nausea
Generally considered safe.
Ginkgo(tree leaves)
Ginkgo biloba
Improve memory, relieve vertiligo
Generally considered safe; may cause GI distress, dizziness. May Inhibit blood clotting.
Ginseng
Panax ginseng(Asian)
P.quinquefolius(American)
Boost immunity, increase endurance.
Generally considered safe. May cause insomnia and high blood pressure.
Note: Allergies may occur for some herbs.
*Adopted from Table H18-2, Whittney.E and Rolfes.S, Understanding Nutrition, 10th Edition.
 
 
Herbal Remedies for Sickle Cell Disease #10003




 
**HERB AND DRUG INTERACTIONS
 
HERB
DRUG
INTERACTION
PATIENT GUIDELINES
Chamomile(flowers)
Anticoagulant(blood thinners) Warfarin
Prolong bleeding time.
Avoid taking with sedatives or alcohol.
Garlic(bulbs)
Aspirin,Warfarin
Prolong bleeding time.
Avoid use after surgery.
Ginger
Aspirin,Warfarin
Prolong bleeding time.
Use only briefly during pregnancy.
Avoided by patients on anticoagulants or have a history of gallstones.
Ginkgo
Anticoagulant
Acetaminophen
Blood thinning effect.
Enhance effect.
Absorption is unaffected by food intake.
Ginseng
Asian-Anticoagulants



American-Corticosteroids
Blood thinning effect hence increased likelyhood of hemorrhage.
Enhance hormonal response.
Do not use with patients undergoing steroid therapy.
Licorice
Thiazide medications
Potassium


Cortisol
Counteract effects.
Increased leading to Sensitivity to glycosides.
Prolongs half-life which leads to Hypokalemia, high blood pressure and edema.

** Adopted from
i)Table H18-3, Whittney.E and Rolfes.S, Understanding Nutrition, 10th Edition.
ii)Herb and Drug Interactions in Manual of Clinical Nutrition Management.
 
Well folks those are some of the herbs we can look at today but please hit us up if you have questions on any other herbs of interest. Drop us a comment on your experience in using herbal remedies or ay questions you have about herbal remedies.
 
Love Life!
Joyner Musombi

 
 

NATURAL HEALING I

So far in SCA management, bone marrow transplant has been the only cure for SCA. But complexities in finding a suitable donor, normally a compatible family member, and the precarious nature of the procedure, make it necessary to find alternative therapy. Alternative therapy, which is often the use of natural remedies and herbs, may be used in place of or in addition to conventional therapies to promote a patient’s health status. Herbalism is the use of herbs for healing and has been used over the centuries to cure diseases.
Herbal treatment has been a great area of study in SCA management.  Even Flo  is one of the well researched herbal blends that aids in the management of SCA naturally. EvenFlo is a natural analgesic that helps replenishes blood flow, combats blood deficiencies such as anemia and alleviates symptoms from lack of proper blood flow, including dizziness and shortness of breath. It also reduces body pain by containing Ferulic Acid, which prevents spasming. EvenFlo also treats chronic pain through the anti-inflammatory and microcirculation properties of several herbs found in the formula. It has been clinically studied to show can increase hemoglobin and can reduce sickle cell crisis pain, naturally without side effects.
Read More on Even Flo HERE

Natural Healing Sickle Cell #10003

Herbal Precautions  
It is important for SCA clients as well as for the rest of the population to consult with their physician when you resort to turn to herbal remedies. Now just because plants are ‘natural’ it does not mean that they are beneficial or safe. This is because herb-drug interactions can create problems. They may inhibit a drug while some herbs may be toxic to our health!!! They can have grave effects to our health like causing organ damage and/or failure. Herbs are dietary supplements and that aid the body to function at optimum when there’s a need to bring it back to balance.
It is imperative to have the following information when considering alternative therapies:
  • True identification of herbs.
  • Purity of herbal preparations. Check for additives in dietary supplements.
  • Appropriate uses and contradictions of herbs. When and how are the herbs used?
  • Effectiveness of herbs. Look at research reports to validate claims of effectiveness.
  • Variability of herbs. Not all species are equal in their properties. Some may lack beneficial properties found in others or may be poisonous while others are not. This applies to different parts of the plant too.
  • Accuracy of labels. Some labels may have info on the species and quantities of active ingredients which may be false.
  • Safe dosages of herbs. This should be given in consideration to changing concentration of active ingredients from one batch of supplements to the next.
  • Interactions with other herbs and drugs. Herbs may interfere with, or potentiate, the effects of other herbs and drugs.
  • Adverse reactions and toxicity levels of herbs. Clients may have allergic reactions among other undesirable reactions to certain herbs.

When using an alternative therapy, consulting a physician is highly recommended to enable you to come up with a comprehensive treatment plan as well as avert any problems. Healthy living involves making wise choices with regards to the type of the therapy we decide to follow and the benefits and risks involved whether great or small.
Do you have any experience with herbal remedies for healthcare management? Let know how it was for you in comparison to other pharmaceutical drugs.
Let’s catch up next time for more on natural healing and herb news!!



Love life!!!
Joyner Musombi